Publications
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Leber B, Ruiz MT, Elgendy H, Pettersson F, Prebet T, Vigil CE, Parikh RC, Korgaonkar S, Bello F, Davis KL, Gaugler L, Strocchia M, Sieluk J, Li Y, Schuh AC. Real-world treatment patterns and outcomes with oral azacitidine maintenance therapy in patients with acute myeloid leukemia. Cancer. 2025 Apr 15;131(8):e35845. doi: 10.1002/cncr.35845
Loria-Rebolledo LE, van Woerden HC, Bryers H, Erdem S, Watson V. Preferences of recent mums in remote and rural areas for type of intrapartum care: a discrete choice experiment. Patient. 2024 Nov;17(6):663-72. doi: 10.1007/s40271-024-00704-8.
Morris MJ, de Bono J, Nagarajah J, Sartor O, Wei XX, Nordquist LT, Koshkin VS, Chi KN, Krause BJ, Herrmann K, Rahbar K, Vickers A, Mirante O, Ghouse R, Fizazi K, Tagawa ST. Correlation analyses of radiographic progression-free survival with clinical and health-related quality of life outcomes in metastatic castration-resistant prostate cancer: analysis of the phase 3 VISION trial. Cancer. 2024 Oct 15;130(20):3426-35. doi: 10.1002/cncr.35438
Vass C, Boeri M, Shields G, Seo J. Making use of technology to improve stated preference studies. Patient. 2024 Sep;17(5):483-91. doi: 10.1007/s40271-024-00693-8
Gnanasakthy A, Romano DeMuro C. Editorial - The limitations of EQ‑5D as a clinical outcome assessment tool. Patient. 2024 May;17(3):215-7. doi: 10.1007/s40271-024-00683-w
Muhlbacher AC, de Bekker-Grob EW, Rivero-Arias O, Levitan B, Vass C. How to present a decision object in health preference research: attributes and levels, the decision model, and the descriptive framework. Patient. 2024 Feb 10. doi: 10.1007/s40271-024-00673-y
Goyal RK, Chen H, Abughosh SM, Holmes HM, Candrilli SD, Johnson ML. Overall survival associated with CDK4/6 inhibitors in patients with HR+/HER2- metastatic breast cancer in the United States: a SEER-Medicare population-based study. Cancer. 2023 Apr 1;129(7):1051-63. doi: 10.1002/cncr.34675
Watson V, Bryers H, Krucien N, Erdem S, Burnside M, van Woerden HC. The perception of women in rural and remote Scotland about intrapartum care: a qualitative study. Patient. 2023 Mar;16(2):117-25. doi: 10.1007/s40271-022-00608-5
Gnanasakthy A, Qin S, Norcross L. Editorial - FDA guidance on selecting, developing, or modifying fit-for-purpose clinical outcome assessments: old wine in a new bottle? Patient. 2023 Jan. doi: 10.1007/s40271-022-00607-6
Mansfield C, Bullok K, Fuhs JV, Tockhorn-Heidenreich A, Andrews JS, DiBenedetti D, Matthews BR, Darling JC, Sutphin J, Hauber B. The patient voice: exploring treatment preferences in participants with mild cognitive concerns to inform regulatory decision making. Patient. 2022 Sep;15(5):551-64. doi: 10.1007/s40271-022-00576-w
Vass CM, Barton A, Payne K. Towards personalising the use of biologics in rheumatoid arthritis: a discrete choice experiment. Patient. 2022 Jan;15(1):109-19. doi: 10.1007/s40271-021-00533-z
Garland SN, Savard J, Eisel SL, Wassersug RJ, Rockwood NJ, Thoms J, Jim HSL, Gonzalez BD. A 2‐year prospective analysis of insomnia as a mediator of the relationship between androgen deprivation therapy and perceived cognitive function in men with prostate cancer. Cancer. 2021 Dec 15;127(24):4656-64. doi: 10.1002/cncr.33850
Gnanasakthy A. Editorial - FDA guidance on assessment of patient‑reported outcomes in cancer trials: a breath of fresh air or a storm in a teacup? Patient. 2021 Nov;14(6):695-7. doi: 10.1007/s40271-021-00542-y
Shields GE, Brown L, Wells A, Capobianco L, Vass C. Utilising patient and public involvement in stated preference research in health: learning from the existing literature and a case study. Patient. 2021 Jul;14(4):399-412. doi: 10.1007/s40271-020-00439-2
Vass CM, Boeri M, Poulos C, Turner AJ. Matching and weighting in health preference research. Presented at the 2021 Virtual 12th Meeting of the International Academy of Health Preference Research; June 2021. [abstract] Patient. 2021 Jun 18; p.1-6. doi: 10.1007/s40271-021-00532-0
Pearce A, Harrison M, Watson V, Street DJ, Howard K, Bansback N, Bryan S. Respondent understanding in discrete choice experiments: a scoping review. Patient. 2021 Jan;14(1):17-53. doi: 10.1007/s40271-020-00467-y
Vass CM, Boeri M. Mobilising the next generation of stated-preference studies: the association of access device with choice behaviour and data quality. Patient. 2021 Jan;14(1):55-63. doi: 10.1007/s40271-020-00484-x
Doward LC, Balp M-M, Twiss J, Slota C, Cryer D, Brass CA, Anstee QM, Sanyal AJ. Development of a patient-reported outcome measure for non-alcoholic steatohepatitis (NASH-CHECK): results of a qualitative study. Patient. 2020 Dec 18. doi: 10.1007/s40271-020-00485-w
Hollin IL, Craig BM, Coast J, Beusterien K, Vass CM, DiSantostefano R, Peay H. Reporting formative qualitative research to support the development of quantitative preference study protocols and corresponding survey instruments: guidelines for authors and reviewers. Patient. 2020 Feb;13:121-36. doi: 10.1007/s40271-019-00401-x
Meernik C, Kirchhoff AC, Anderson C, Edwards TP, Deal AM, Baggett CD, Kushi LH, Chao CR, Nichols HB. Material and psychological financial hardship related to employment disruption among female adolescent and young adult cancer survivors. Cancer. 2020 Jan 1;127(1):137-48. doi: 10.1002/cncr.33190
Lewis S, Romano C, De Bruecker G, Murrough JW, Shelton R, Singh JB, Jamieson C. Analysis of clinical trial exit interview data in patients with treatment-resistant depression. Patient. 2019 Oct;12(5):527-37. doi: 10.1007/s40271-019-00369-8
Barrett A, Hahn-Pedersen J, Kragh N, Evans E, Gnanasakthy A. Patient-reported outcome measures in atopic dermatitis and chronic hand eczema in adults. Patient. 2019 Oct;12(5):445-9. doi: 10.1007/s40271-019-00373-y
Vass CM, Davison N, Vander Stichele G, Payne K. A picture is worth a thousand words: the role of survey training materials in stated-preference studies. Patient. 2019 Sep 30. doi: 10.1007/s40271-019-00391-w
Rigby D, Vass C, Payne K. Opening the 'Black Box': an overview of methods to investigate the decision-making process in choice-based surveys. Patient. 2019 Sep 5. doi: 10.1007/s40271-019-00385-8
Crawford R, Sully K, Conroy R, Johnson C, Doward L, Bell T, Welch V, Peloquin F, Gater A. Patient-centered insights on treatment decision making and living with acute myeloid leukemia and other hematologic cancers. Patient. 2019 Aug 28. doi: 10.1007/s40271-019-00384-9
Vass CM, Rigby D, Paynee K. “I was trying to do the maths”: exploring the impact of risk communication in discrete choice experiments. Patient. 2019 Feb;12(1):113-23. doi: 10.1007/s40271-018-0326-4
Wright SJ, Vass CM, Sim G, Burton M, Fiebig DG, Payne K. Accounting for scale heterogeneity in healthcare-related discrete choice experiments when comparing stated preferences: a systematic review. Patient. 2018 Oct;11(5):475-88. doi: 10.1007/s40271-018-0304-x
Park EM, Deal AM, Yopp JM, Edwards T, Resnick SJ, Song MK, Nakamura ZM, Rosenstein DL. Understanding health-related quality of life in adult women with metastatic cancer who have dependent children. Cancer. 2018 Jun 15;124(12):2629-36. doi: 10.1002/cncr.31330
Vass CM, Wright S, Burton M, Payne K. Scale heterogeneity in healthcare discrete choice experiments: a primer. Patient. 2018 Apr;11(2):167-73. doi: 10.1007/s40271-017-0282-4
Barnett CL, Auffenberg GB, Cheng Z, Yang F, Wang J, Wei JT, Miller DC, Montie JE, Mamawala M, Denton BT. Optimizing active surveillance strategies to balance the competing goals of early detection of grade progression and minimizing harm from biopsies. Cancer. 2018 Feb 15;124(4):698-705. doi: 10.1002/cncr.31101
Ikenwilo D, Heidenreich S, Ryan M, Mankowski C, Nazir J, Watson V. The best of both worlds: an example mixed methods approach to understand men's preferences for the treatment of lower urinary tract symptoms. Patient. 2018 Feb;11(1):55-67. doi: 10.1007/s40271-017-0263-7
Sharp L, McDevitt J, Brown C, Carsin AE, Comber H. Association between smoking at diagnosis and cause-specific survival in patients with rectal cancer: results from a population-based analysis of 10,794 cases. Cancer. 2017 Jul 1;123(13):2543-50. doi: 10.1002/cncr.30583
Copley-Merriman C, Zelt S, Clark M, Gnanasakthy A. Impact of measuring patient-reported outcomes in dermatology drug development. Patient. 2017 Apr;10(2):203-13. doi: 10.1007/s40271-016-0196-6
Gray E, Eden M, Vass C, McAllister M, Louviere J, Payne K. Valuing preferences for the process and outcomes of clinical genetics services: a pilot study. Patient. 2016 Apr;9(2):135-47. doi: 10.1007/s40271-015-0133-0
Poulos C, Kinter E, Yang J-C, Bridges JFP, Posner JD, Reder AT. Patient preferences for injectable treatments for multiple sclerosis in the United States: a discrete-choice experiment. Patient. 2016 Apr;9(2):171-80. doi: 10.1007/s40271-015-0136-x
Kohler RE, Goyal RK, Lich KH, Domino ME, Wheeler SB. Association between medical home enrollment and health care utilization and costs among breast cancer patients in a state Medicaid program. Cancer. 2015 Nov 15;121(22):3975-81. doi: 10.1002/cncr.29596
Merdan S, Tomlins SA, Barnett CL, Morgan TM, Montie JE, Wei JT, Denton BT. Assessment of long-term outcomes associated with urinary prostate cancer antigen 3 and TMPRSS2:ERG gene fusion at repeat biopsy. Cancer. 2015 Nov 15;121(22):4071-9. doi: 10.1002/cncr.29611
Hunter JE, Zepp JM, Gilmore MJ, Davis JV, Esterberg EJ, Muessig KR, Peterson SK, Syngal S, Acheson LS, Wiesner GL, Reiss JA, Goddard KA. Universal tumor screening for Lynch syndrome: assessment of the perspectives of patients with colorectal cancer regarding benefits and barriers. Cancer. 2015 Sep 15;121(18):3281-9. doi: 10.1002/cncr.29470
Nastoupil LJ, Sinha R, Byrtek M, Zhou X, Taylor MD, Friedberg JW, Link BK, Cerhan JR, Dawson K, Flowers CR. The use and effectiveness of rituximab maintenance in patients with follicular lymphoma diagnosed between 2004 and 2007 in the United States. Cancer. 2014 Jun 15;120(12):1830-7. doi: 10.1002/cncr.28659
Harrison M, Rigby D, Vass C, Flynn T, Louviere J, Payne K. Risk as an attribute in discrete choice experiments: a systematic review of the literature. Patient. 2014 Jun;7(2):151-70. doi: 10.1007/s40271-014-0048-1
Martin P, Byrtek M, Dawson K, Ziemiecki RM, Friedberg JW, Cerhan JR, Flowers CR, Link BK. Patterns of delivery of chemoimmunotherapy to patients with follicular lymphoma in the United States: results of the National Lymphocare Study. Cancer. 2013 Dec 1;119(23):4129-36. doi: 10.1002/cncr.28350
Nelson LM, Forsythe A, McLeod L, Pulgar S, Maldonado M, Coles T, Zhang Y, Webb SM, Badia X. Psychometric evaluation of the Cushing's Quality-of-Life Questionnaire. Patient. 2013 Apr 1;Advance Online.
Herring WL, Herrmann JW. The single-day surgery scheduling problem: sequential decision-making and threshold-based heuristics. OR spectrum: quantitative approaches in management. 2012 Apr 1;34(2):429-59.
Colosia AD, Peltz G, Pohl G, Liu E, Copley-Merriman K, Khan S, Kaye JA. A review and characterization of the various perceptions of quality cancer care. Cancer. 2011 Mar 1;117(5):884-96.
Deal LS, Williams VSL, Fehnel SE. Development of an electronic daily uterine fibroid symptom diary. Patient. 2011 Jan 1;4(1):31-44.
Baldwin M, Spong A, Doward LC, Gnanasakthy A. Patient-reported outcomes, patient-reported information: from randomized controlled trials to the social web and beyond. Patient. 2011 Jan;4(1):11-7. doi: 10.2165
Maurel J, Martins AS, Poveda A, Lopez-Guerrero JA, Cubedo R, Casado A, Martinez-Trufero J, Ramon Ayuso J, Lopez-Pousa A, Garcia-Albeniz X, Garcia del Muro X, de Alava E. Imatinib plus low-dose doxorubicin in patients with advanced gastrointestinal stromal tumors refractory to high-dose imatinib: a phase I-II study by the Spanish Group for Research on Sarcomas. Cancer. 2010 Aug 1;116(15):3692-701. doi: 10.1002/cncr.25111
Nathan RA, Dalal AA, Stanford RH, Meltzer EO, Schatz M, Derebery J, Mintz M, Thompson MA, DiBenedetti DB. Qualitative development of the rhinitis control assessment test (RCAT), an instrument for evaluating rhinitis symptom control. Patient. 2010 Jun 1;3(2):91-9.
Fehnel S, Zografos L, Curtice T, Shah H, McLeod L. The burden of restless legs syndrome: an assessment of work productivity, sleep, psychological distress, and health status among diagnosed and undiagnosed individuals in an internet-based panel. Patient. 2008 Jul 1;1(3):201-10.
Rothman KJ. Epidemiologic methods in clinical trials. Cancer. 1977 Apr;39(Suppl(4)):1771-5.