Publications
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Displaying 1 through 44 of 44 publications.
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Barrett AM, Olayinka-Amao O, Martin S, Doshi D, Bishop KM, Youakim JM. Assessing experiences with trofinetide for rett syndrome: interviews with caregivers of participants in clinical trials. Clin Ther. 2025 Mar;47(3):181-8. doi: 10.1016/j.clinthera.2024.12.012
Percy AK, Ryther R, Marsh ED, Neul JL, Benke TA, Berry-Kravis EM, Feyma T, Lieberman DN, Ananth AL, Fu C, Buhrfiend C, Barrett A, Doshi D, Darwish M, An D, Bishop KM, Youakim JM. Results from the phase 2/3 DAFFODIL study of trofinetide in girls aged 2-4 years with Rett syndrome. Med. 2025 Feb 28. doi: 10.1016/j.medj.2025.100608
Barrett A, Olayinka-Amao O, Ziemssen T, Bharadia T, Henke C, Kamudoni P. A plain language summary of a study exploring the experiences of people with relapsing-remitting multiple sclerosis: what symptoms and impacts of the disease matter most and how can they be evaluated better? Neurodegener Dis Manag. 2025 Feb;15(1):9-16. doi: 10.1080/17582024.2024.2441068
Fridman I, Smith C, Barrett A, Johnson S, Bhowmick A, Hayes S, Elston Lafata J. Navigating disagreements on health information: how patients with cancer perceive health care providers' approaches to discussing patient-identified information. JCO Oncol Pract. 2025 Jan 28. doi: 10.1200/OP.24.00071
Haggerty A, Barrett A, Dine J, Iadeluca l, Smith AJ, Powell K. PARP inhibitors and maintenance treatment decision-making in advanced ovarian cancer: patient and clinician perspectives. Poster presented at the Society of Gynecologic Oncology 2024 Annual Meeting; March 16, 2024. San Diego, CA. [abstract] Gynecol Oncol. 2024 Nov; 190(Suppl 1):S395-6. doi: 10.1016/j.ygyno.2024.07.585
Percy AK, Neul JL, Benke TA, Berry-Kravis EM, Glaze DG, Marsh ED, Barrett AM, An D, Bishop KM, Youakim JM. Trofinetide for the treatment of Rett syndrome: long-term safety and efficacy results of the 32-month, open-label LILAC-2 study. Med. 2024 Oct 11;5(10):1275-1281. doi: 10.1016/j.medj.2024.06.007
Barrett A, Olayinka-Amao O, Ziemssen T, Bharadia T, Henke C, Kamudoni P. Understanding the symptoms and impacts experienced by people with relapsing-remitting MS: a qualitative investigation using semi-structured interviews. Neurol Ther. 2024 Apr;13(2):449-64. doi: 10.1007/s40120-024-00584-y
Tam S, Neslund-Dudas C, Barrett AM, Barrow LCJ, Fridman I, Kinlaw AC, Puviindran P, Royce TJ, Smith AB, Stein JN, Wood WA, Lafata JE. The perceived usability of virtual visits among black adults' receiving oncology care: a qualitative analysis. Oncologist. 2024 Feb 2;29(2):e237-47. doi: 10.1093/oncolo/oyad260
Kamudoni P, Amtmann D, Johns J, Cook KF, Salem R, Salek S, Raab J, Middleton R, Repovic P, Alschuler KN, Geldern GV, Wundes A, Barrett A, Olayinka-Amao O, Henke C. People with multiple sclerosis help design a tool to measure physical functioning and how it affects their daily lives: a plain language summary. Neurodegener Dis Manag. 2024;14(15):119-25. doi: 10.1080/17582024.2024.2357002
Kamudoni P, Olayinka-Amao B, Barrett A, Park J. Appropriateness of Skindex 29 1 3 in cutaneous lupus erythematosus. Poster presented at the 30th Annual Conference of the International Society for Quality of Life Research; October 18, 2023. Alberta, Canada. [abstract] Qual Life Res. 2023 Nov 4; 32(Supple 2):S203. doi: 10.1007/s11136-023-03530-x
Kamudoni P, Olayinka-Amao O, Barrett A, Park J. Identifying meaningful aspects of worst itch in cutaneous lupus erythematosus for assessment using an itch numeric rating scale. Poster presented at the 30th Annual Conference of the International Society for Quality of Life Research; October 18, 2023. Alberta, Canada. [abstract] Qual Life Res. 2023 Nov 4; 32(Suppl2):S204. doi: 10.1007/s11136-023-03530-x
Haggerty A, Barrett A, Dine J, Martin L, Shah P, Buckingham T. Shared decision making in frontline maintenance therapy for ovarian cancer: a qualitative assessment. Poster presented at the 2022 Society of Gynecologic Oncology Annual Meeting; March 18, 2022. Phoenix, AZ. [abstract] Gynecol Oncol. 2022 Aug; 166(Supplement 1):S286. doi: 10.1016/S0090-8258(22)01810-8
Kamudoni P, Amtmann D, Johns J, Cook KF, Salem R, Salek S, Raab J, Middleton R, Repovic P, Alschuler KN, von Geldern G, Wundes A, Barrett A, Olayinka-Amao B, Henke C. The validity, responsiveness, and score interpretation of the PROMISnq Physical Function - Multiple Sclerosis 15a short form in multiple sclerosis. Mult Scler Relat Disord. 2022 Jun;62:103753. doi: 10.1016/j.msard.2022.103753
Clinch S, McDougall F, Barrett A, Olayinka-Amao B, Craveiro L, Baker M, Lindemann M. Understanding MS symptoms and impacts through semi-structured interviews with clinical experts and people living with MS. Poster presented at the 2021 CMSC Annual Meeting; October 25, 2021. Orlando, FL.
Clinch S, McDougall F, Barrett A, Olayinka-Amao B, Craveiro L, Baker M, Lindemann M. A patient-focused qualitative study to support content validity of digital performance assessments in MS. Poster presented at the 2021 ECTRIMS Annual Congress; October 13, 2021. [abstract] Mult Scler J Exp Transl Clin. 2021 Oct 21; 27(2 Suppl):329. doi: 10.1177/13524585211044667
Myers K, Barrett A, Leach C, Matsuda T, Stevinson K, Lui C, Fu C, Bittoni M, Presley C. Understanding treatment preferences of patients with KRAS p.G12C[LC1] [MK2] – mutated advanced non-small cell lung cancer. Poster presented at the 2021 Virtual World Conference on Lung Cancer; September 8, 2021.
Gnanasakthy A, Barrett A, Norcross L, D’Alessio D, Romano (DeMuro) C. Use of patient and investigator global impression scales: a review of Food and Drug Administration–approved labeling, 2009 to 2019. Value Health. 2021 Jul;24(7):1016-23. doi: 10.1016/j.jval.2021.01.005
Gnanasakthy A, Barrett A, D'Alessio D, Norcross L. Review of patient and clinician global assessments in PRO labeling (2017-2019). Poster presented at the ISPOR Virtual 2020 Conference; May 2020. [abstract] Value Health. 2020 May 1; 23(Suppl 1):S299. doi: 10.1016/j.jval.2020.04.094
Barrett A, Hahn-Pedersen J, Kragh N, Evans E, Gnanasakthy A. Patient-reported outcome measures in atopic dermatitis and chronic hand eczema in adults. Poster presented at the ISPOR 2019 European Conference; November 4, 2019. Copenhagen, Denmark. [abstract] Value Health. 2019 Dec; 22(S3).
Barrett A, Hahn-Pedersen J, Kragh N, Evans E, Gnanasakthy A. Patient-reported outcome measures in atopic dermatitis and chronic hand eczema in adults. Patient. 2019 Oct;12(5):445-9. doi: 10.1007/s40271-019-00373-y
Romano (DeMuro) CD, Lewis S, Barrett A, Andersson FL, Williams V, Ancoli-Israel S, Roth T. Development of the Nocturia Sleep Quality Scale: a patient-reported outcome measure of sleep impact related to nocturia. Sleep Med. 2019 Jul;59:101-6. doi: 10.1016/j.sleep.2019.02.006
Lewis EF, Coles TM, Lewis S, Nelson LM, Barrett A, DeMuro Romano C, Stull DE, Turner SJ, Chang CG. Development, psychometric evaluation, and initial feasibility assessment of a symptom tracker for use by patients with heart failure (HFaST). J Patient Rep Outcomes. 2019 May 2;3(1):26. doi: 10.1186/s41687-019-0113-6
Gnanasakthy A, Barrett A, Evans E, D'Alessio D, Romano (DeMuro) C. A review of patient-reported outcomes labeling for oncology drugs approved by the FDA and the EMA (2012-2016). Value Health. 2019 Feb;22(2):203-9. doi: 10.1016/j.jval.2018.09.2842
DeMuro C, Lewis S, Barrett A, Andersson FL. Assessing sleep impact in patients with nocturia disorder. Poster presented at the 2018 ISPOR 23rd Annual International Meeting; May 22, 2018. Baltimore, MD. [abstract] Value Health. 2018 May; 21(Suppl 1):S267. doi: 10.1016/j.jval.2018.04.1816
Williams VSL, Soliman AM, Barrett AM, Klein KO. Review and evaluation of patient-centered psychosocial assessments for children with central precocious puberty or early puberty. J Pediatr Endocrinol Metab. 2018 Apr 25;31(5):485-95.
Barrett A, DiBenedetti DB, Rane P, Wade S, Qian Y. Assessing attitudes and treatment preferences among patients with hyperlipidemia: patient focus groups. Poster presented at the AHA QCOR 2017 Scientific Sessions; April 2, 2017. Arlington, VA. [abstract] Circ Cardiovasc Qual Outcomes. 2017 Mar; 10(Suppl 3):A022.
Brogan AP, DeMuro C, Barrett AM, D’Alessio D, Bal V, Hogue SL. Payer perspectives on patient-reported outcomes in health care decision making: oncology examples. J Manag Care Spec Pharm. 2017 Feb;23(2):124-34. doi: 10.18553/jmcp.2017.23.2.125.
Barrett AM, DiBenedetti D, Phatak H, Masseria C, Kamble S. Focus groups exploring experiences with and preferences for oral anticoagulants in people with nonvalvular atrial fibrillation. Poster presented at the 2016 ISPOR 21st Annual International Meeting; May 23, 2016. Washington, DC. [abstract] Value Health. 2016 May; 19(3):A51.
Hogue S, Brogan AP, DeMuro C, Barrett A, D'Alessio D, Bal V. Influence of Patient-Reported Outcomes (PRO) on market access decisions in markets with centralized healthcare systems. Poster presented at the 2015 ISPOR 18th Annual European Congress; November 2015. Milan, Italy.
Traina SB, McQuarrie K, Barrett A, DiBenedetti D, McLeod L. Content validity of the current health satisfaction questionnaire (CHES-Q) among people living with type 2 diabetes mellitus and comorbid chronic kidney disease (CKD). Poster presented at the 2015 ISPOR 18th Annual European Congress; November 2015. Milan, Italy.
Hogue SL, Brogan AP, DeMuro C, Barrett A, McLeod LD, D'Alessio D, Bal V. Payer perspectives of patient reported outcomes data: an online assessment. Poster presented at the ISOQOL 22nd Annual Conference; October 24, 2015. Vancouver, Canada.
Hogue S, Brogan AP, DeMuro C, Barrett A, D'Alessio D, Bal V. Influence of patient-reported outcomes on market access decisions in decentralized markets (Brazil, Italy, Spain, and the United States). Poster presented at the 2015 ISPOR 20th Annual International Meeting; May 2015. Philadelphia, PA. [abstract] Value Health. 2015 May; 18(3):A212.
Doward L, Højbjerre L, Hogue S, Fernandez M, Barrett A, Crawford R, Kragh N, Aagren M. Influence of patient-reported outcomes on regulatory, HTA, and market access decisions: obesity and diabetes case examples. Poster presented at the 2015 ISPOR 20th Annual International Meeting; May 2015. Philadelphia, PA. [abstract] Value Health. 2015; 18:A1-A333.
Barrett AM, Harris NI, DeMuro-Mercon CJ, Phatak H. Literature review of patient-reported outcome measures assessing anticoagulant therapy. Poster presented at the 2014 ISPOR 17th Annual European Congress; November 2014. Amsterdam.
Cuyún Carter G, Barrett AM, Kaye JA, Liepa AM, Winfree KB, John WJ. A comprehensive review of nongenetic prognostic and predictive factors influencing the heterogeneity of outcomes in advanced non-small-cell lung cancer. Cancer Manag Res. 2014 Oct 23;2014(6):437-49. doi: 10.2147/CMAR.S63603
Barrett AM, Clark MJ, DeMuro C, Esser D. Proxy-reported questionnaires for young children with asthma: a structured review. Eur Respir J. 2013 Aug 1;42(2):513-26.
DiFranza JR, Masaquel A, Barrett AM, Colosia AD, Mahadevia PJ. Systematic literature review assessing tobacco smoke exposure as a risk factor for serious respiratory syncytial virus disease among infants and young children. BMC Pediatr. 2012 Jun 1;12:81.
Colosia AD, Masaquel A, Hall CB, Barrett AM, Mahadevia PJ, Yogev R. Residential crowding and severe respiratory syncytial virus disease among infants and young children: a systematic literature review. BMC Infect Dis. 2012 Apr 1;12:95.
Copley-Merriman K, Barrows SM, Whiteley J, Barrett AM. Value messages: developing, incorporating, and making use of a core strategic tool. Poster presented at the 2009 ISPOR 14th Annual International Meeting; May 28, 2009.
Copley-Merriman K, Barrett AM, Barrows SM, Whiteley J. Understanding and transmitting the value of a new drug. Poster presented at the International Society for Pharmacoeconomics and Outcomes Research 14th Annual International Meeting; May 15, 2009.
Barrett AM, Colosia AD, Boye KS, Oyelowo O. Burden of obesity: 10-year review of published literature on direct and indirect costs in nine countries. Poster presented at the 2008 ISPOR 13th Annual International Meeting; May 7, 2008. Toronto, Canada. [abstract] Value Health. 2008 May; 11(3):A160.
Barrett AM, Lucero MA, Le T, Robinson RL, Dworkin RH, Chappell AS. Epidemiology, public health burden, and treatment of diabetic peripheral neuropathic pain: a review. Pain Med. 2007 Sep 1;8(Suppl 2):S50-62.
Mladsi DM, Barrett AM. Winners and losers: patterns in economic evaluations of anti-epileptic drugs. Poster presented at the 2006 ISPOR 11th Annual International Meeting; May 20, 2006. Philadelphia, PA. [abstract] Value Health. 2006 May; 9(3):A83.
DiBenedetti DB, Barrett AM, Fehnel SE, Downs KE. The humanistic impact of oral anti-diabetic agents: patients' perspectives. Poster presented at the 65th American Diabetes Association; June 2005.